Thursday, May 15, 2008
Day Two, we will make it through
Day two did not start out to good. After I posted last night, we went to sleep. Around 2:30 am the phone rang. The nurse said that the Gopher had had a seizure and they thought we should come back to the hospital. The doctor asked me a few questions and then we got up, changed and headed over. It was an eerie feeling walking down Fannin with absolutely no cars. Not even an ambulance or people walking around. We made it up to his room and the nurse described the events that led up to the seizure. He had had some trouble breathing so they suctioned out his throat and placed a face shield with oxygen in front of him. He did a little better, but continued to have low oxygen levels. So they suctioned again and gave him a breathing treatment. That helped a little, but he continued to have labored breathing. At around 2:15 am he started having a very mild seizure that only lasted about 2 minutes. They gave him medication to stop the seizure and also gave him steroids to help open up his throat (which might be swollen from the breathing tube used during surgery.) At 4:00am they decided to do a CT scan of his brain to check for possible bleeding. It was quite an event to get all his wires and monitors and equipment on the bed to move him. It is a good thing he is a small boy or there wouldn't have been room for him. The CT went fine and the results showed that there was no bleeding, but he did have a little air in there (so now he is an air-head). The neurosurgeons said that this is very normal after surgery and the air will dissipate on its own. They decided to put him on maintenance medication for the seizure for at least a few days and if everything goes well they will take him off of it. We will speak with a neurologist later this morning about that. He has been very sleepy from all the different medications and that is not helping his breathing. The breathing treatments have helped a lot and they took a chest x-ray this morning. It showed a little fluid in his lungs, so they changed his antibiotics to help prevent pneumonia. They are also going to clean out his nose a little and give him some saline spray and ointment to try and help him breath a little better through his nose. Right now he will stay in the ICU until his breathing improves and they can take him off the oxygen. We are doing the best we can on very little sleep and the doctors and nurses have been super. They have been explaining everything and we are able to stay in the room with him 24/7 if we need to. We took a break at 9:00am to shower, check-out of our hotel and write this. Tonight we are hoping to stay in the Ronald McDonald house that is in the hospital. It is only one floor up from where he is, so we will be closer if he has any more problems. Thanks again for all your support and we will keep you posted.
Wednesday, May 14, 2008
Day one is almost done
Well the day started at 4:30 am this morning when we had to head to the hospital for the Gopher's surgery. They took him back at around 8:30am, but didn't start until 9:30am. The neurosurgeon went first and we spent several agonizing hours waiting for him to finish (we had thought that his would be the shorter portion of the surgery.) After four long hours, he finished and the ENT started (that was at 2:00pm). Finally at 4:45pm, the ENT came out and talked with us. She said that they were able to completely remove the cyst and the tract connecting it to the brain. He had lots of extra skin on his new nose, so she added a few stitches to make it look nicer. She called it the 10 foot rule (they should look good from at least 10 feet away). Right now he wouldn't pass, but hopefully later he will. She said that he will have trouble breathing through his nose for awhile, but after it heals a little he will be better. She said at that time the neurosurgeon was closing up and would be out in an hour or so. At around 5:30 pm the neurosurgeon came out. He described his portion of the surgery. He said that it took longer than he expected because the tract went further in than he had originally thought. It took a long time for him to close up the hole and then put everything back together (like Humpty Dumpty). He said that we should expect him to not look to good for the first few days. (He wasn't kidding.) We had to wait another two hours until we were able to see him in the recovery room. Once we did see him, it was a little hard to take. His nose was much smaller, even with the bandages we could tell that there was a big (now little) difference. His head was completely wrapped in bandages (like a stocking cap) and on the side by his ear you can see part of the sutures. His eyes are swollen shut and he is not a happy camper. He has a hard time breathing through his nose (as to be expected) so they have oxygen blowing by him. He has tubes coming out of everywhere (and I mean everywhere) except his right hand. He was very unhappy when we got there so they gave him some morphine (I'd want drugs too if someone cut my head open). Finally Daddy got to hold him and that really helped calm him down. He was fine until they had to put him back in the bed for the transfer to the pediatric ICU. Once we got to the ICU it was like all hands on deck. He had 6 nurses plugging and unplugging and checking and flushing. Once they got him all connected (I think he is wired for internet now), Daddy was able to hold him again. He was fine for awhile, until the nurse cleaned the drainage from his nose. Then nothing made him comfortable. So we put him back in his bed with some music playing and he finally settled down. We decided that it was a good time for us to leave and try and get some sleep. It was hard leaving him, but he needs his rest and so do we. It has been a very long day and tomorrow will probably be another one. He is supposed to only be in the ICU for 24 hours, but that depends on how his breathing and pain management go. We will keep you posted and thanks to everyone for all the prayers and well wishes. We certainly needed them and felt them today.
Monday, May 12, 2008
The Dancing Queen and the Holy Queen
Tuesday, April 1, 2008
Swing batter batter swing.
Hippity Hop, Easter's on its Way!
Tuesday, March 18, 2008
Lions,Tigers, and Bears, Oh My!
Spring as sprung. So we took our annual trip to the zoo. It was quite cool in the morning, so all the animals were out and about. We had a close encounter with a jaguar (above) and got to see him do more than sleep.
The bears were out too. This is a spectacled bear (although he doesn't look very spectacled). He was fun to watch.
Everybody loves the komodo dragon. They even had dragon babies. They weren't very cute, but very interesting to watch.
Another new addition was this baby gibbon. It took awhile to see him, because they stayed on the roof of the viewing area. But they had signs to watch out because he is so little that he can get out of the fence. So they said not to be alarmed if you see him in the bushes outside the enclosure. We weren't that lucky. But we did get to see him climb around with his mother.
Hippo booties. They have a brand new hippo exhibit. It is very nice, but of course all the hippos did was stand there.
Monday, March 3, 2008
Happy Birthday Texas
This past weekend was the Texas Independence Day Celebration at Washington on the Brazos. We usually go on Sunday for the Texas-size birthday cake, but this year we had to go on Saturday. The weather was absolutely perfect and Goose and Bear had a great time. They made corn husk dolls and danced and got see what life was like in the eighteen hundreds.
I tried to convince them to push the cultivator behind the oxen, but they weren't interested. They were able to see what children in those days had to do. They were able to grind corn and wash clothes.
When we got home, they wanted to try washing their own clothes. So I got them a washboard (works great on poopy baby clothes) a washtub and some soap. They washed their clothes and Gopher's. By the time they finished washing and hanging they decided they didn't want to have to do that every day. It would take too long and they didn't think they got the clothes clean enough. So after they had their fun, I rewashed everything in our modern convenience the washing machine.
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